Below is a representative list of neuropathy organizations which support discovering treatments and cures for the many forms of disabilities.
Ongoing research to solve the mysteries of neuropathy are costly endeavors involving lengthily trials. Thanks to the passionate efforts of a volunteers and professionals, many non-profit organizations, foundations and charities have been established to combat these often deadly conditions.
The following organizations feature many links to resources for the non-scientist to understand what some of neurological disorders are. By visiting these sites you could join in their dedication to make a difference by contributing your time and hopefully make a donation.
DISCLAIMER: Inclusion of organizations in this list does NOT constitute any endorsement of their policies. The list is presented for informational purposes only. Not every ALS charity operates the same way and do your due diligence getting involved is essential.
The organization’s mission is to lead the fight in treating and curing ALS through global research and nationwide advocacy, while also empowering people with Lou Gehrig’s Disease and their families to live fuller lives by providing them with compassionate care and support.
A.L.S. Family Charitable Foundation
Started in 2001 in hopes of creating a brighter future for those living with A.L.S. in New England, it honors all of the courageous individuals and families touched by ALS.
Although not a household name by any means, Charcot-Marie-Tooth Disease is the most commonly inherited neurological disorder and is found world-wide in all races and ethnic groups.Founded in 1983, the Charcot-Marie-Tooth Association’s (CMTA) goals are patient support, public education, promotion of research and ultimately the treatment and cure of Charcot-Marie-Tooth (CMT).
Project A.L.S. was started to identify and fund the most promising scientific research that will lead to the first effective treatments and a cure for A.L.S.
ALS Hope Foundation
The ALS Hope Foundation is committed to helping people with ALS today…and dedicated to finding a cure for those of the future.
ALS Therapy Development Institute
Not a charity, AHS TDI is a non-profit laboratory featuring the largest dedicated ALS research lab in the world, 15+ active partnerships with biotech/pharma, and most active ALS forum online.
Short for New England Amyotrophic Lateral Sclerosis, it functions as an academic research consortium, a contracted research organization, and a resource tool for ALS community. Founded in 1995 with 9 academic clinical centers in the New England area, NEALS now has over research centers committed to the principles of open scientific communication, peer review, full and open disclosure of potential conflicts of interest, and democratic governance of its organization and activities.
National Amyotrophic Lateral Sclerosis (ALS) Registry
The National ALS Registry is a registry mandated by The United States Congress for persons in the U.S. with ALS. It is the only population-based registry in the U.S. that collects information to help scientists learn more about who gets ALS and its causes. If you have the disease, consider joining the Registry and completing the brief risk-factor surveys because your answers could help scientists defeat ALS.
Muscular Dystrophy Association ALS Division
The Muscular Dystrophy Association is the world’s leading nonprofit health agency dedicated to finding treatments and cures for muscular dystrophy, amyotrophic lateral sclerosis (ALS) and other neuromuscular diseases. We do so by funding worldwide research; by providing comprehensive health care services and support to MDA families nationwide; and by rallying communities to fight back through advocacy, fundraising and local engagement.
Les Turner ALS Foundation
Since 1977, the Les Turner ALS Foundation has been a leader in research, patient care and education about Amyotrophic Lateral Sclerosis (ALS), better known as Lou Gehrig’s Disease, and other motor neuron diseases (MND). The Foundation is also one of the nation’s largest independent ALS organizations and has raised over $52 million to fight Lou Gehrig’s Disease.
Prize4Life was founded in 2006 with a singular mission: to accelerate the discovery of treatments and a cure for ALS, a terminal disease whose cause has eluded scientists for over a century. Since then, we have successfully launched and awarded several prizes and programs that have taken us closer to fulfilling that mission.
The Angel Fund
The Angel Fund is a non-profit organization dedicated to supporting ALS investigations at the Cecil B. Day Laboratory for Neuromuscular Research, internationally recognized for its ground-breaking work in the fight against this devastating illness.
ALS Guardian Angels
ALS Guardian Angels grants help families with expenses not covered by Medicare, Medicaid, insurance and other reimbursement programs. Recipients may apply for and receive grants up to $1,500 each. Grant approval will be based on need and available funds.
International Alliance of ALS/MND Associations
The International Alliance of ALS/MND Associations was founded in 1992 to provide an international community for individual ALS/MND associations from around the world. Our vision is to engage with our members, prospective members and other organisations to share resources globally, advance awareness and support people with ALS/MND worldwide.
Transverse Myelitis Association
The Transverse Myelitis Association (TMA) is a not-for-profit international foundation dedicated to the support of children, adolescents, and adults with a spectrum of rare neuro-immunologic disorders including: Acute Disseminated Encephalomyelitis (ADEM), Neuromyelitis Optica (NMO), Optic Neuritis (ON) and Transverse Myelitis (TM).
The Stop ALD Foundation
Adrenoleukodystrophy, or ALD, is a deadly genetic disease that affects 1 in 18,000 people. It most severely affects boys and men. This brain disorder destroys myelin, the protective sheath that surrounds the brain’s neurons — the nerve cells that allow us to think and to control our muscles. It knows no racial, ethnic or geographic barriers.
A website to find practical advice, latest research news and downloads of medical papers, a page to tell your own story, a place to contact and speak to others, what fundraising is going on and a chance to advertise your own event, our projects, a charity shop plus useful links to other sites.
Aicardi Syndrome Foundation
The Aicardi Syndrome Foundation is a volunteer-based, non-profit organization dedicated to raising research funds and awareness for Aicardi syndrome.